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Saturday, April 13, 2013

OFF TO SEE THE MAN BEHIND THE CURTAIN

Smile~ you know it's funny


Trying to rally up the strength to start packing for my trip to Vanderbilt on Monday. I will be going to the Autonomic Dysfunction Center for testing for postural orhtostatic tachycardia syndrome or POTS. After reading about this condition, I'm not sure which is worse..POTS or Fibromayalgia/CFS, or the horrible possibility of all of the above. One symptom of POTS is the crippling fatigue and since fatigue for me is worse than the pain, this is my last hope of a diagnosis.  I see the doctor on Tuesday and the testing will be the following couple of days. I have decided this is my final journey to any specialist or clinic. I'm tired and I'm through. If I leave Vanderbilt without a diagnosis, that's it.  I have been to every specialist I can think of and as most of you know and have experienced, you usually leave feeling like a helpless, bumbling idiot and humiliated by some eye-rolling, smart assed , condescending  prick or prickess Physician. Wow that was a mouthful.
 My sister is going with me so I guess we will try to enjoy a little of Nashville if we feel like it. She also has Fibromyalgia so it is very likely if we get out on the town there may be a report of two old  zombies near Tootsie's Orchid Lounge. We remind ourselves of  Tim Conway  from  The Carol Burnett Show as we shuffle along. Some of you will remember the character.  We must laugh or we will cry....
Hope we haven't missed Happy Hour!

Anyway, please remember us in your thoughts and prayers and hopefully I will get a little more education on POTS and how it manifests in folks diagnosed with Chronic Fatigue to share with everyone. Or I will have a major hissy fit and pull the cover over my head.
 Hopefully I will feel like blogging a little from Nashville. But as of this minute, I'm in the bed, oh what a shock, getting ready to watch all the episodes of Bates Motel. Tomorrow is another day, I shall pack then...maybe....